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Moving forward on consent practices in Australia

Citation

McWhirter, RE and Eckstein, L, Moving forward on consent practices in Australia, Journal of Bioethical Inquiry: an interdisciplinary forum for ethical and legal debate, 15, (2) pp. 243-257. ISSN 1176-7529 (2018) [Refereed Article]

Copyright Statement

Copyright Journal of Bioethical Inquiry Pty Ltd. 2018

DOI: doi:10.1007/s11673-018-9843-z

Abstract

Allowing persons to make an informed choice about their participation in research is a pre-eminent ethical and legal requirement. Almost universally, this requirement has been addressed through the provision of written patient information sheets and consent forms. Researchers and others have raised concerns about the extent to which such forms用articularly given their frequent lengthiness and complexity用rovide participants with the tools and knowledge necessary for autonomous decision-making. Concerns are especially pronounced for certain participant groups, such as persons with low literacy and Indigenous persons. Multimedia strategies have the potential to usefully supplement current consent practices in Australia; however, information is needed about the need for supplementary consent practices, along with drivers for and barriers against adoption. This study initiates the required evidence base through an audit of informed consent practices for medical research in the Australian state of Tasmania to assess the need for, and current uptake of, supplementary consent strategies. Drivers for and barriers against adoption of multimedia consent practices were explored in detail through interviews with key stakeholders, including researchers, HREC chairs and members, and research participants, including Indigenous participants.

Item Details

Item Type:Refereed Article
Keywords:informed consent, research ethics, multimedia consent, consent apps
Research Division:Philosophy and Religious Studies
Research Group:Applied Ethics
Research Field:Bioethics (human and animal)
Objective Division:Expanding Knowledge
Objective Group:Expanding Knowledge
Objective Field:Expanding Knowledge through Studies of Human Society
UTAS Author:McWhirter, RE (Dr Rebekah McWhirter)
UTAS Author:Eckstein, L (Dr Lisa Eckstein)
ID Code:124889
Year Published:2018
Deposited By:Law
Deposited On:2018-03-16
Last Modified:2018-12-07
Downloads:0

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