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Patient and family involvement: A discussion of co-led redesign of healthcare services


Prior, SJ and Campbell, S, Patient and family involvement: A discussion of co-led redesign of healthcare services, Journal of Participatory Medicine, 10, (1) Article e5. ISSN 2152-7202 (2018) [Refereed Article]


Copyright Statement

Copyright 2018 The Authors Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0)

DOI: doi:10.2196/jopm.8957


The involvement of patients and their families in the redesign of healthcare services is an important option in providing a service that addresses the patientsí needs and improves health outcomes. However, it is a resource-intensive approach, and it is currently not clear when it should be used, and what should be the reasoning behind this decision. Some health systems of international standing have created a patient engagement program as a selling point. This paper discusses how co-led redesign can be beneficial in improving health service and more effectively engaging patients. Potential barriers for patient involvement are discussed. Patient involvement can be integrated into the health system at three main levels of engagement: direct care, organizational design and governance, and policy-making. The aim of this paper is to describe how co-led redesign is compatible with different levels of patient involvement and to address the challenges in delivering a co-led redesign in healthcare. Co-led redesign not only involves the collection of quantitative data for assessing the current systems but also the collection of qualitative data through patient, family, and staff interviews to determine the barriers to patient satisfaction. Co-led redesign is a resource-rich process that requires expertise in data collection and a clinical group that is devoted to implementing recommended changes. Currently, a number of countries have utilized co-led redesign for many different types of healthcare services. Resource availability and cost, process time, and lack of outcome measures are three major limiting factors.

Item Details

Item Type:Refereed Article
Keywords:co-led redesign, health care, patient and family engagement, patient involvement, rural health
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health services and systems not elsewhere classified
Objective Division:Health
Objective Group:Public health (excl. specific population health)
Objective Field:Public health (excl. specific population health) not elsewhere classified
UTAS Author:Prior, SJ (Dr Sarah Prior)
UTAS Author:Campbell, S (Professor Steven Campbell)
ID Code:124183
Year Published:2018
Deposited By:Health Sciences
Deposited On:2018-02-13
Last Modified:2019-12-03
Downloads:124 View Download Statistics

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