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Transforming Home: parentsí experiences of caring for children on the autism spectrum in Tasmania, Australia

Citation

Owen, C and McCann, D, Transforming Home: parents' experiences of caring for children on the autism spectrum in Tasmania, Australia, Housing Studies pp. 1-26. ISSN 0267-3037 (2017) [Refereed Article]


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DOI: doi:10.1080/02673037.2017.1390075

Abstract

As the private dwelling becomes the preferred site of care for individuals with a variety of complex needs, there has been a burgeoning interest in housing adaptations and the impact on experiences of home. The majority of studies are situated within the contexts of ageing, the disabled body and chronic medical conditions. In this paper, we present the results of a self-directed photography pilot study exploring the experience of carers of children on the autism spectrum in Tasmania, Australia. The findings highlight the multifarious and exacting negotiations required to meet the complex and idiosyncratic needs of children with autism and those of other family members. A key theme is a heightened need for containment enacted through micro-scale modifications to the physical fabric and spatial organization of the dwelling and through less tangible but pervasive practices and routines. The multiple constraints and extensive impact on families emphasize an urgent need for targeted research, policy development and support for this population.

Item Details

Item Type:Refereed Article
Keywords:autism, home, care, housing modifications
Research Division:Built Environment and Design
Research Group:Architecture
Research Field:Architectural Design
Objective Division:Health
Objective Group:Public Health (excl. Specific Population Health)
Objective Field:Disability and Functional Capacity
Author:Owen, C (Dr Ceridwen Owen)
Author:McCann, D (Ms Damhnat McCann)
ID Code:122294
Year Published:2017
Deposited By:Architecture (Discipline)
Deposited On:2017-11-08
Last Modified:2017-11-09
Downloads:0

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