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Improving research about us, with us: a draft framework for inclusive autism research
Citation
Chown, N and Robinson, J and Beardon, L and Downing, J and Hughes, L and Leatherland, J and Fox, K and Hickman, L and MacGregor, D, Improving research about us, with us: a draft framework for inclusive autism research, Disability and Society, 32, (5) pp. 720-734. ISSN 0968-7599 (2017) [Refereed Article]
Copyright Statement
Copyright 2017 Informa UK Limited, trading as Taylor & Francis Group
DOI: doi:10.1080/09687599.2017.1320273
Abstract
It is both epistemologically as well as ethically problematic if the autistic voice is not heard in relation to social scientific research seeking to further develop knowledge of autism. Ever since autism first emerged, it has remained medicalised and almost exclusively the preserve of non-autistic researchers. More recently, autistic individuals have begun to contribute to autism research. However, the vast majority of research in autism is still undertaken on autistic people, rather than with them, and is often not concerned with improving the dayto-day lives of people with autism. We discuss the concepts of participatory research and emancipatory research before presenting a draft framework for what we regard as truly inclusive research in autism. Our proposals are firmly based on ideas developed by the members of a university-based group of autistic adults (the Asperger’s Consultation Group) as well as the knowledge and experience of the other contributors.
Item Details
Item Type: | Refereed Article |
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Keywords: | autism, research methods, disability, emancipatory research, participatory research, social model of disability |
Research Division: | Education |
Research Group: | Specialist studies in education |
Research Field: | Special education and disability |
Objective Division: | Expanding Knowledge |
Objective Group: | Expanding knowledge |
Objective Field: | Expanding knowledge in psychology |
UTAS Author: | Downing, J (Dr Jillian Downing) |
ID Code: | 121264 |
Year Published: | 2017 |
Web of Science® Times Cited: | 59 |
Deposited By: | Education |
Deposited On: | 2017-09-20 |
Last Modified: | 2018-06-21 |
Downloads: | 0 |
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