eCite Digital Repository

Improving research about us, with us: a draft framework for inclusive autism research


Chown, N and Robinson, J and Beardon, L and Downing, J and Hughes, L and Leatherland, J and Fox, K and Hickman, L and MacGregor, D, Improving research about us, with us: a draft framework for inclusive autism research, Disability and Society, 32, (5) pp. 720-734. ISSN 0968-7599 (2017) [Refereed Article]

Copyright Statement

Copyright 2017 Informa UK Limited, trading as Taylor & Francis Group

DOI: doi:10.1080/09687599.2017.1320273


It is both epistemologically as well as ethically problematic if the autistic voice is not heard in relation to social scientific research seeking to further develop knowledge of autism. Ever since autism first emerged, it has remained medicalised and almost exclusively the preserve of non-autistic researchers. More recently, autistic individuals have begun to contribute to autism research. However, the vast majority of research in autism is still undertaken on autistic people, rather than with them, and is often not concerned with improving the dayto-day lives of people with autism. We discuss the concepts of participatory research and emancipatory research before presenting a draft framework for what we regard as truly inclusive research in autism. Our proposals are firmly based on ideas developed by the members of a university-based group of autistic adults (the Aspergerís Consultation Group) as well as the knowledge and experience of the other contributors.

Item Details

Item Type:Refereed Article
Keywords:autism, research methods, disability, emancipatory research, participatory research, social model of disability
Research Division:Education
Research Group:Specialist studies in education
Research Field:Special education and disability
Objective Division:Expanding Knowledge
Objective Group:Expanding knowledge
Objective Field:Expanding knowledge in psychology
UTAS Author:Downing, J (Dr Jillian Downing)
ID Code:121264
Year Published:2017
Web of Science® Times Cited:67
Deposited By:Education
Deposited On:2017-09-20
Last Modified:2018-06-21

Repository Staff Only: item control page