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Citizensí access to their digital health data in eleven countries - a comparative study


Nohr, C and Wong, MC and Turner, P and Almond, H and Parv, L and Gilstad, H and Koch, S and Hardardottir, GA and Hypponen, H and Marcilly, R and Sheik, Z and Day, K and Kushniruk, A, Citizens' access to their digital health data in eleven countries - a comparative study, Studies in Health Technology and Informatics 228: Proceedings of MIE2016 at HEC2016 - Exploring Complexity in Health: An Interdisciplinary Systems Approach, 28 August - 2 September 2016, Munich, Germany, pp. 685-689. ISBN 978-1-61499-677-4 (2016) [Refereed Conference Paper]


Copyright Statement

Copyright 2016 European Federation for Medical Informatics (EFMI) and IOS Press. Published under Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0)

DOI: doi:10.3233/978-1-61499-678-1-685


Governments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and benchmarked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with e-health.

Item Details

Item Type:Refereed Conference Paper
Keywords:health portals, EHR, self-management, patient records, health data, health information technology
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health informatics and information systems
Objective Division:Information and Communication Services
Objective Group:Information services
Objective Field:Electronic information storage and retrieval services
UTAS Author:Wong, MC (Dr Ming Wong)
UTAS Author:Turner, P (Associate Professor Paul Turner)
UTAS Author:Almond, H (Dr Helen Almond)
ID Code:121240
Year Published:2016
Web of Science® Times Cited:4
Deposited By:Information and Communication Technology
Deposited On:2017-09-19
Last Modified:2022-06-17
Downloads:58 View Download Statistics

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