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Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia

Citation

Nohr, C and Parv, L and Kink, P and Cummings, E and Almond, H and Norgaard, JR and Turner, P, Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia, Bmc Health Services Research, 17 Article 534. ISSN 1472-6963 (2017) [Refereed Article]


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Copyright Statement

Copyright 2017 The Authors. Licensed under Creative Commons Attribution 4.0 International (CC BY 4.0) https://creativecommons.org/licenses/by/4.0/ The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

DOI: doi:10.1186/s12913-017-2482-y

Abstract

Background: Most countries face an ageing population, increasing chronic diseased, and constrictions on budget for providing health services. Involving patients in their own care by allowing them access to their patient data is a trend seen in many places.

Methods: Data on the type and level of access citizens have to their own health data in three countries was gathered from public sources.

Results: Data from each individual country is presented and the experiences of Denmark, Estonia and Australia are examined whilst similarities and differences explored. The discussion adopts a citizen-centred perspective to consider how the different e-portal systems support, protect and structure citizen interactions with their own health data in three key areas: Security, privacy and data protection; User support; and Citizen adoption and use.

Conclusions: The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of a structured approach to addressing differences in citizen health and e-health literacy. This research also confirms while current data provides detail on the availability and use of personal health data by citizens, questions still remain over the ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the three countries experiences, supporting citizen access to their health data will be useful to improve these initiatives and guide other countries aspiring to support similar initiatives.

Item Details

Item Type:Refereed Article
Keywords:Electronic health record, Medical informatics application, Patient centred care, Health services
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Health Information Systems (incl. Surveillance)
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Health and Support Services not elsewhere classified
Author:Cummings, E (Associate Professor Liz Cummings)
Author:Almond, H (Mrs Helen Almond)
Author:Turner, P (Associate Professor Paul Turner)
ID Code:120361
Year Published:2017
Deposited By:Health Sciences
Deposited On:2017-08-23
Last Modified:2017-09-11
Downloads:13 View Download Statistics

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