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A pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder


Due, C and Smith, IG and Allen, P and Button, E and Cheek, C and Quarmby, L and Stephens, M and Paku, S and Ferguson, S and Fordyce, K, A pilot study of social inclusion and quality of life for parents of children with autism spectrum disorder, Journal of Intellectual & Developmental Disability pp. 1-10. ISSN 1366-8250 (2017) [Refereed Article]

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DOI: doi:10.3109/13668250.2017.1310812


Background: Access to both childcare and early intervention for pre-school children with autism spectrum disorder (ASD) can be difficult for parents or carers and may impact on parental social inclusion and wellbeing. There is limited research investigating how specialist centres offering both services may impact on parental outcomes.

Method: Parents whose children were attending such a specialised childcare setting in two states in Australia (Tasmania and South Australia) were invited to participate in a mixed-methods study investigating quality of life (Qol), social inclusion and perceptions of the centres.

Results: Parents had typically low levels of QoL but reported a range of benefits from receiving services, including increased levels of community participation and increased competence and confidence in themselves as parents.

Conclusions: Childcare centres offering specialist multi-disciplinary early intervention and parental support are valued by parents and assist with social inclusion.

Item Details

Item Type:Refereed Article
Keywords:autism spectrum disorder, quality of life, parental perceptions, early intervention, multidisciplinary, social inclusion
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Mental Health
Objective Division:Health
Objective Group:Specific Population Health (excl. Indigenous Health)
Objective Field:Rural Health
Author:Cheek, C (Mrs Colleen Cheek)
Author:Quarmby, L (Dr Lyndsay Quarmby)
Author:Stephens, M (Ms Miranda Stephens)
ID Code:116989
Year Published:2017
Web of Science® Times Cited:4
Deposited By:Centre for Rural Health
Deposited On:2017-05-26
Last Modified:2017-06-08

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