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The Invisibility of Disadvantage: Why Do We Not Notice?

Citation

Showell, C and Cummings, EA and Turner, P, The Invisibility of Disadvantage: Why Do We Not Notice?, Studies in health technology and informatics, 235 pp. 388-392. ISSN 0926-9630 (2017) [Refereed Article]


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Copyright Statement

Copyright 2017 European Federation for Medical Informatics (EFMI) and IOS Press. Licensed under Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) https://creativecommons.org/licenses/by-nc/4.0/

DOI: doi:10.3233/978-1-61499-753-5-388

Abstract

Personal health records (PHRs) offer tantalising benefits for patients and healthcare providers, including improvements in patient-provider communication, patient empowerment, and access to data and information. A suspicion that disadvantaged patients are less likely to use or benefit from PHRs stimulated a research agenda that included: (a) a literature review; and (b) empirical analysis of eight years' hospital admission and discharge data linked to measures of patient social disadvantage. The results demonstrated an association between disadvantage, increased use of public hospital services and barriers to PHR use. These findings may appear self-evident, but dramatically highlight how disadvantaged patients continue to be overlooked in many e-health design processes, and are rarely a focus of user centred design. The paper concludes by briefly considering the implications of this invisibility.

Item Details

Item Type:Refereed Article
Keywords:Personal health records, Barriers, Disadvantage.
Research Division:Information and Computing Sciences
Research Group:Library and Information Studies
Research Field:Health Informatics
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Health and Support Services not elsewhere classified
Author:Showell, C (Dr Chris Showell)
Author:Cummings, EA (Associate Professor Liz Cummings)
Author:Turner, P (Associate Professor Paul Turner)
ID Code:116063
Year Published:2017
Deposited By:Health Sciences
Deposited On:2017-04-30
Last Modified:2017-08-22
Downloads:6 View Download Statistics

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