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Citizens’ access to their digital health data in eleven countries – a comparative study

Citation

Nohr, C and Wong, MC and Turner, P and Parv, L and Gilstad, H and Koch, S and Hardardottir, GA and Hypponen, H and Almond, H and Marcilly, R and Sheik, A and Day, K, Nohr, Citizens' access to their digital health data in eleven countries - a comparative study, Studies in Health Technology and Informatics: Exploring Complexity in Health: An Interdisciplinary Systems Approach Vol.228, 228, (1) pp. 685-689. ISSN 0926-9630 (2016) [Refereed Article]


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Copyright Statement

Copyright 2016 European Federation for Medical Informatics (EFMI) and IOS Press. Licensed under Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) https://creativecommons.org/licenses/by-nc/4.0/

DOI: doi:10.3233/978-1-61499-678-1-685

Abstract

Abstract. Governments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and bench-marked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with ehealth.

Item Details

Item Type:Refereed Article
Keywords:Patient Records, Health Data, Health Information technology
Research Division:Information and Computing Sciences
Research Group:Library and Information Studies
Research Field:Health Informatics
Objective Division:Information and Communication Services
Objective Group:Information Services
Objective Field:Electronic Information Storage and Retrieval Services
Author:Wong, MC (Dr Ming Wong)
Author:Turner, P (Associate Professor Paul Turner)
Author:Almond, H (Mrs Helen Almond)
ID Code:115457
Year Published:2016
Deposited By:Computing and Information Systems
Deposited On:2017-03-27
Last Modified:2017-05-08
Downloads:3 View Download Statistics

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