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I miss being me: phenomenological effects of deep brain stimulation
Citation
Gilbert, F and Goddard, E and Viana, JNM and Carter, A and Horne, M, I miss being me: phenomenological effects of deep brain stimulation, American Journal of Bioethics Neuroscience, 8, (2) pp. 96-109. ISSN 2150-7740 (2017) [Refereed Article]
Copyright Statement
Copyright 2017 The Author(s). Published by Taylor & Francis© Frederic Gilbert, Eliza Goddard, John Noel M. Viaña, Adrian Carter, and Malcolm Horne. Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/)
DOI: doi:10.1080/21507740.2017.1320319
Abstract
The phenomenological effects of deep brain stimulation (DBS) on the self of the patient remains poorly understood and under described in the literature, despite growing evidence that a significant number of patients experience postoperative neuropsychiatric changes. To address this lack of phenomenological evidence, we conducted in-depth, semistructured interviews with 17 patients with Parkinson’s disease who had undergone DBS. Exploring the subjective character specific to patients’ experience of being implanted gives empirical and conceptual understanding of the potential phenomenon of DBSinduced self-estrangement. Our study concluded that (1) the more patients preoperatively felt alienated by their illness, the more they experienced postoperative self-estrangement, and (2) the notion of self-estrangement seems to exist in association with certain common qualitative characters, namely, loss of control, which reflects a deteriorative estrangement, and distorted perception of capacities, which reveals a restorative estrangement. These findings indicate that subjective self-reports help us to understand some aspects of the potential phenomenon of DBS-induced self-estrangement. seems to exist in association with certain common qualitative characters; namely loss of control which reflects a deteriorative estrangement, and distorted perception of capacities which reveals a restorative estrangement. These findings indicate that subjective self-reports help us to understand some aspects of the potential phenomenon of DBS-induced self-estrangement.
Item Details
| Item Type: | Refereed Article |
|---|---|
| Keywords: | alienation, deep brain stimulation, distorted perception, loss of control, Parkinson’s disease, self, side effects, self-estrangement |
| Research Division: | Philosophy and Religious Studies |
| Research Group: | Applied ethics |
| Research Field: | Ethical use of new technology |
| Objective Division: | Culture and Society |
| Objective Group: | Ethics |
| Objective Field: | Bioethics |
| UTAS Author: | Gilbert, F (Dr Frederic Gilbert) |
| UTAS Author: | Goddard, E (Dr Eliza Goddard) |
| UTAS Author: | Viana, JNM (Mr Noel Viana) |
| ID Code: | 113054 |
| Year Published: | 2017 |
| Funding Support: | Australian Research Council (DE150101390) |
| Deposited By: | College Office - CALE |
| Deposited On: | 2016-12-09 |
| Last Modified: | 2018-05-18 |
| Downloads: | 93 View Download Statistics |
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