eCite Digital Repository

Identifying public expectations of genetic biobanks

Citation

Critchley, C and Nicol, D and McWhirter, R, Identifying public expectations of genetic biobanks, Public Understanding of Science, 26, (6) pp. 671-687. ISSN 0963-6625 (2017) [Refereed Article]

Copyright Statement

The Author(s) 2016

DOI: doi:10.1177/0963662515623925

Abstract

Understanding public priorities for biobanks is vital for maximising utility and efficiency of genetic research and maintaining respect for donors. This research directly assessed the relative importance the public place on different expectations of biobanks. Quantitative and qualitative results from a national sample of 800 Australians revealed that the majority attributed more importance to protecting privacy and ethical conduct than maximising new healthcare benefits, which was in turn viewed as more important than obtaining specific consent, benefit sharing, collaborating and sharing data. A latent class analysis identified two distinct classes displaying different patterns of expectations. One placed higher priority on behaviours that respect the donor (n = 623), the other on accelerating science (n = 278). Additional expectations derived from qualitative data included the need for biobanks to be transparent and to prioritise their research focus, educate the public and address commercialisation.

Item Details

Item Type:Refereed Article
Keywords:biobanking, genomic research, public health, public opinion
Research Division:Philosophy and Religious Studies
Research Group:Applied Ethics
Research Field:Bioethics (human and animal)
Objective Division:Health
Objective Group:Public Health (excl. Specific Population Health)
Objective Field:Public Health (excl. Specific Population Health) not elsewhere classified
Author:Nicol, D (Professor Dianne Nicol)
Author:McWhirter, R (Dr Rebekah McWhirter)
ID Code:110992
Year Published:2017 (online first 2016)
Deposited By:Menzies Institute for Medical Research
Deposited On:2016-08-25
Last Modified:2017-12-04
Downloads:0

Repository Staff Only: item control page