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Avoiding failure for Australia’s digital health record: the findings from a rural e-health participatory research project


Almond, H and Cummings, E and Turner, P, Avoiding failure for Australia's digital health record: the findings from a rural e-health participatory research project, Studies in Health Technology and Informatics, 227 pp. 8-13. ISSN 0926-9630 (2016) [Refereed Article]


Copyright Statement

Copyright 2016 The Authors and IOS Press Licensed under Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0)

DOI: doi:10.3233/978-1-61499-666-8-8


Low adoption and use of Australia’s digital health record has driven the Australian Government to trial ‘opt-out’ registration from mid-June 2016. The assumption that automatic registration will increase use and thereby deliver benefit requires further investigation especially amongst those sections of the population in rural, regional, remote Australia living with complex chronic conditions. This paper reports on findings from a community based participatory e-health research project based on an initiative where people with complex chronic conditions and their carers attended a rural health promotion and lifestyle modification program. Through co-operative enquiry, health promotion officers and their clients were actively supported to adopt and use Australia’s digital health record as an intervention. Simultaneously they were encouraged to reflect on its design and their perceptions of its overall impact on their individual ability to self-manage complex chronic conditions. The findings, ultimately contributing to a conceptual implementation and evaluation framework for Australia’s digital health record that could directly avoid failure of the new ‘opt-out’ approach being adopted.

Item Details

Item Type:Refereed Article
Keywords:My Health Record, participatory research, complex chronic diseases, health promotion, lifestyle modification, health informatics
Research Division:Health Sciences
Research Group:Health services and systems
Research Field:Health informatics and information systems
Objective Division:Health
Objective Group:Evaluation of health and support services
Objective Field:Health education and promotion
UTAS Author:Almond, H (Dr Helen Almond)
UTAS Author:Cummings, E (Associate Professor Liz Cummings)
UTAS Author:Turner, P (Associate Professor Paul Turner)
ID Code:110422
Year Published:2016
Web of Science® Times Cited:4
Deposited By:Health Sciences
Deposited On:2016-07-27
Last Modified:2018-02-06
Downloads:118 View Download Statistics

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