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Understanding public reactions to commercialization of biobanks and use of biobank resources

journal contribution
posted on 2023-05-18, 20:37 authored by Dianne NicolDianne Nicol, Christine Critchley, Rebekah McWhirterRebekah McWhirter, Tess WhittonTess Whitton
Biobanks will be essential to facilitate the translation of genomic research into real improvements to healthcare. Biobanking is a long-term commitment, requiring public support as well as appropriate regulatory, social and ethical guidelines to realize this promise. There is a growing body of research that explores the necessary conditions to ensure public trust in biomedical research, particularly in the context of biobanking. Trust is, however, a complex relationship. More analysis of public perceptions, attitudes and reactions is required to understand the primary triggers that influence gain and loss of trust. Further, the outcomes of these analyses require detailed consideration to determine how to promote trustworthy institutions and practices.

This article uses national survey data, combined with the results of a community consultation that took place in Tasmania, Australia in 2013, to analyze the specific issue of public reactions to commercialization of biobanks and their outputs. This research will enhance the ability of biobanks to respond preemptively to public concerns about commercialization by establishing and maintaining governance frameworks that are responsive to those concerns. The results reveal that it is possible to counter the 'natural prejudice' that many people have against commercialization through independent governance of biobank resources and transparency with regard to commercial involvement. Indeed, most participants agreed that they would rather have a biobank with commercial involvement than none at all. This analysis provides nuanced conclusions about public reactions towards commercialization and equips researchers and biobank operators with data on which to base policies and make governance decisions in order to tackle participant concerns respectfully and responsively.

History

Publication title

Social Science & Medicine

Volume

162

Pagination

79-87

ISSN

0277-9536

Department/School

Faculty of Law

Publisher

Pergamon Press

Place of publication

United Kingdom

Rights statement

Copyright 2016 Elsevier Ltd.

Repository Status

  • Restricted

Socio-economic Objectives

Technological ethics; Law reform; Expanding knowledge in human society