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Understanding public reactions to commercialization of biobanks and use of biobank resources

Citation

Nicol, D and Critchley, C and McWhirter, R and Whitton, T, Understanding public reactions to commercialization of biobanks and use of biobank resources, Social Science & Medicine, 162 pp. 79-87. ISSN 0277-9536 (2016) [Refereed Article]

Copyright Statement

Copyright 2016 Elsevier Ltd.

DOI: doi:10.1016/j.socscimed.2016.06.028

Abstract

Biobanks will be essential to facilitate the translation of genomic research into real improvements to healthcare. Biobanking is a long-term commitment, requiring public support as well as appropriate regulatory, social and ethical guidelines to realize this promise. There is a growing body of research that explores the necessary conditions to ensure public trust in biomedical research, particularly in the context of biobanking. Trust is, however, a complex relationship. More analysis of public perceptions, attitudes and reactions is required to understand the primary triggers that influence gain and loss of trust. Further, the outcomes of these analyses require detailed consideration to determine how to promote trustworthy institutions and practices.

This article uses national survey data, combined with the results of a community consultation that took place in Tasmania, Australia in 2013, to analyze the specific issue of public reactions to commercialization of biobanks and their outputs. This research will enhance the ability of biobanks to respond preemptively to public concerns about commercialization by establishing and maintaining governance frameworks that are responsive to those concerns. The results reveal that it is possible to counter the 'natural prejudice' that many people have against commercialization through independent governance of biobank resources and transparency with regard to commercial involvement. Indeed, most participants agreed that they would rather have a biobank with commercial involvement than none at all. This analysis provides nuanced conclusions about public reactions towards commercialization and equips researchers and biobank operators with data on which to base policies and make governance decisions in order to tackle participant concerns respectfully and responsively.

Item Details

Item Type:Refereed Article
Keywords:Public reaction, Commercialization, Biobanking, Biomedical research, Donor perspectives, Survey, Community consultation, Deliberative democracy event
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Health and Community Services
Objective Division:Health
Objective Group:Public Health (excl. Specific Population Health)
Objective Field:Behaviour and Health
Author:Nicol, D (Professor Dianne Nicol)
Author:Critchley, C (Associate Professor Christine Critchley)
Author:McWhirter, R (Dr Rebekah McWhirter)
Author:Whitton, T (Ms Tess Whitton)
ID Code:109928
Year Published:2016
Deposited By:Menzies Institute for Medical Research
Deposited On:2016-07-07
Last Modified:2017-02-20
Downloads:0

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