Nicol, D and Critchley, C and McWhirter, R and Whitton, T, Understanding public reactions to commercialization of biobanks and use of biobank resources, Social Science & Medicine, 162 pp. 79-87. ISSN 0277-9536 (2016) [Refereed Article]
Copyright 2016 Elsevier Ltd.
This article uses national survey data, combined with the results of a community consultation that took place in Tasmania, Australia in 2013, to analyze the specific issue of public reactions to commercialization of biobanks and their outputs. This research will enhance the ability of biobanks to respond preemptively to public concerns about commercialization by establishing and maintaining governance frameworks that are responsive to those concerns. The results reveal that it is possible to counter the 'natural prejudice' that many people have against commercialization through independent governance of biobank resources and transparency with regard to commercial involvement. Indeed, most participants agreed that they would rather have a biobank with commercial involvement than none at all. This analysis provides nuanced conclusions about public reactions towards commercialization and equips researchers and biobank operators with data on which to base policies and make governance decisions in order to tackle participant concerns respectfully and responsively.
|Item Type:||Refereed Article|
|Keywords:||Public reaction, Commercialization, Biobanking, Biomedical research, Donor perspectives, Survey, Community consultation, Deliberative democracy event|
|Research Division:||Medical and Health Sciences|
|Research Group:||Public Health and Health Services|
|Research Field:||Health and Community Services|
|Objective Group:||Public Health (excl. Specific Population Health)|
|Objective Field:||Behaviour and Health|
|Author:||Nicol, D (Professor Dianne Nicol)|
|Author:||Critchley, C (Associate Professor Christine Critchley)|
|Author:||McWhirter, R (Dr Rebekah McWhirter)|
|Author:||Whitton, T (Ms Tess Whitton)|
|Deposited By:||Menzies Institute for Medical Research|
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