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A year in the life of a person recently diagnosed with atrial fibrillation in Denmark

Citation

Hoegh, V and Cummings, E and Riahi, S and Lundbye-Christensen, S and Frederiksen, K and Delmar, C, A year in the life of a person recently diagnosed with atrial fibrillation in Denmark, International Journal of Person Centered Medicine, 5, (4) pp. 166-181. ISSN 2043-7730 (2015) [Refereed Article]


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Copyright 2015 The Author

Official URL: http://www.ijpcm.org/index.php/IJPCM/article/view/...

Abstract

Healthcare services target delivery of a connected patient journey as an indicator of a high quality of care, but knowledge of the patientsí experience is sparse. This case study explores the lived experience of the quality of life and perception of health during the first year of the journey of a person recently diagnosed with atrial fibrillation. Data sources include field notes, transcripts, medical records, letters, and scores from standardized questionnaires. A phenomenologically inspired approach for qualitative data analysis and a descriptive approach for discovering exceptional changes in scores from questionnaires are used. The patient journey in the study consists of; 38 visits to general practice, five visits to the outpatient clinic, and two radio frequency ablations at hospital. Four central themes; balancing responsibilities, navigating the system, adjusting to the situation, and recognizing bodily reactions, are elaborated. In conclusion, hope for a better future is evident throughout the journey. Difficulties of balancing responsibility, conflicting information and lack of support and connection between general practice and the hospital result in putting the participantís dignity at stake. Despite two ablations the participant is affected in his daily life and family life due to physical limitations. Along the study adjustment to the situation is seen, and his new status as grandfather is surprisingly seen to facilitate this adjustment.

Item Details

Item Type:Refereed Article
Keywords:patient journey, lived experience, patient reported outcomes, quality of life, health-related quality of life, health status, atrial fibrillation, phenomenological approach, case study
Research Division:Medical and Health Sciences
Research Group:Public Health and Health Services
Research Field:Public Health and Health Services not elsewhere classified
Objective Division:Health
Objective Group:Public Health (excl. Specific Population Health)
Objective Field:Public Health (excl. Specific Population Health) not elsewhere classified
Author:Cummings, E (Associate Professor Liz Cummings)
ID Code:107363
Year Published:2015
Deposited By:Health Sciences
Deposited On:2016-03-11
Last Modified:2017-11-02
Downloads:0

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