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The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research

Citation

Critchley, CR and Nicol, D and Otlowski, M, The impact of commercialisation and genetic data sharing arrangements on public trust and the intention to participate in biobank research, Public Health Genomics, 18 pp. 160-172. ISSN 1662-4246 (2015) [Refereed Article]

Copyright Statement

2015 S. Karger AG,

DOI: doi:10.1159/000375441

Abstract

Objectives: The necessity for biobanks to share their resources with third parties poses potential risks to public trust and the intention to participate in genetic research. We explore the effects of data sharing and the type of third-party access (public vs. private) on public trust and, in turn, the intention to participate in biobank research. Methods: An experimental design was used to assess a national sample of 1,701 Australians via a computer-assisted telephone interview. Results: The results revealed that trust and the intention to participate significantly decreased in relation to private compared to public biobanks, and when access to thirdparty researchers was allowed compared to when it was not. Somewhat surprisingly, no differences were found in relation to the third party being international compared to Australian, but trust and the intention to participate were significantly eroded when private third parties were allowed access. Those with a university education were particularly distrustful of private biobanks and biobanks that allowed access, while those who were more aware of genetic databases appeared more confident with biobanks sharing with private-sector third parties. Conclusion: The pattern of results suggests that public awareness of the need for biobanks to share their resources widely needs to be increased to maintain public trust and support.

Item Details

Item Type:Refereed Article
Research Division:Law and Legal Studies
Research Group:Law
Research Field:Law not elsewhere classified
Objective Division:Law, Politics and Community Services
Objective Group:Justice and the Law
Objective Field:Law Reform
Author:Critchley, CR (Associate Professor Christine Critchley)
Author:Nicol, D (Professor Dianne Nicol)
Author:Otlowski, M (Professor Margaret Otlowski)
ID Code:107308
Year Published:2015
Funding Support:Australian Research Council (DP110100694)
Web of Science® Times Cited:14
Deposited By:Faculty of Law
Deposited On:2016-03-09
Last Modified:2017-02-16
Downloads:0

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