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Genomics in research and health care with Aboriginal and Torres Strait Islander peoples

Citation

McWhirter, R and Nicol, D and Savulescu, J, Genomics in research and health care with Aboriginal and Torres Strait Islander peoples, Monash Bioethics Review, 33, (2-3) pp. 203-209. ISSN 1836-6716 (2015) [Refereed Article]

Copyright Statement

Copyright 2015 Monash University

DOI: doi:10.1007/s40592-015-0037-8

Abstract

Genomics is increasingly becoming an integral component of health research and clinical care. The perceived difficulties associated with genetic research involving Aboriginal and Torres Strait Islander people mean that they have largely been excluded as research participants. This limits the applicability of research findings for Aboriginal and Torres Strait Islander patients. Emergent use of genomic technologies and personalised medicine therefore risk contributing to an increase in existing health disparities unless urgent action is taken. To allow the potential benefits of genomics to be more equitably distributed, and minimise potential harms, we recommend five actions: (1) ensure diversity of participants by implementing appropriate protocols at the study design stage; (2) target diseases that disproportionately affect disadvantaged groups; (3) prioritise capacity building to promote Indigenous leadership across research professions; (4) develop resources for consenting patients or participants from different cultural and linguistic backgrounds; and (5) integrate awareness of issues relating to Indigenous people into the governance structures, formal reviews, data collection protocols and analytical pipelines of health services and research projects.

Item Details

Item Type:Refereed Article
Keywords:Aboriginal and Torres Strait Islander people, genetic research, genomics, indigenous health, personalised medicine
Research Division:Medical and Health Sciences
Research Group:Oncology and Carcinogenesis
Research Field:Cancer Genetics
Objective Division:Health
Objective Group:Indigenous Health
Objective Field:Aboriginal and Torres Strait Islander Health - Health Status and Outcomes
Author:McWhirter, R (Dr Rebekah McWhirter)
Author:Nicol, D (Professor Dianne Nicol)
ID Code:104155
Year Published:2015
Web of Science® Times Cited:1
Deposited By:Menzies Institute for Medical Research
Deposited On:2015-11-03
Last Modified:2017-11-13
Downloads:1 View Download Statistics

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