File(s) under permanent embargo
Family caregivers’ experiences of caring for a relative with younger onset dementia: a qualitative systematic review
journal contribution
posted on 2023-05-18, 12:26 authored by Cabote, CJ, Marguerite BrambleMarguerite Bramble, Damhnat McCannDamhnat McCannFamily caregiving for people with younger onset dementia affects everyone in the family unit. This article presents findings of a qualitative systematic review exploring the experiences of family caregivers of persons with younger onset dementia. A systematic search resulted in the inclusion of five relevant articles, and two groups within the family unit were identified—child caregivers and adult and spousal caregivers. Using the thematic synthesis approach, five themes emerged: dementia damage, grief for loss of relationship, changes in family roles, positive and negative impacts of family caregiving, and transition to formal care. The review findings support increasing evidence that despite the stress of caring for a person with dementia damage, family members have the capacity to cope, adapt, and grow through their experiences. Nurses can assist families to identify their unique strengths and enhance family resiliency so they can navigate the “lonely road” of younger onset dementia.
History
Publication title
Journal of Family NursingVolume
21Pagination
443-468ISSN
1074-8407Department/School
School of NursingPublisher
Sage Publications, Inc.Place of publication
United StatesRights statement
Copyright 2015 The AuthorsRepository Status
- Restricted