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Family caregivers’ experiences of caring for a relative with younger onset dementia: a qualitative systematic review


Cabote, CJ and Bramble, M and McCann, D, Family caregivers' experiences of caring for a relative with younger onset dementia: a qualitative systematic review, Journal of Family Nursing, 21, (3) pp. 443-468. ISSN 1074-8407 (2015) [Refereed Article]

Copyright Statement

Copyright 2015 The Authors

DOI: doi:10.1177/1074840715573870


Family caregiving for people with younger onset dementia affects everyone in the family unit. This article presents findings of a qualitative systematic review exploring the experiences of family caregivers of persons with younger onset dementia. A systematic search resulted in the inclusion of five relevant articles, and two groups within the family unit were identified—child caregivers and adult and spousal caregivers. Using the thematic synthesis approach, five themes emerged: dementia damage, grief for loss of relationship, changes in family roles, positive and negative impacts of family caregiving, and transition to formal care. The review findings support increasing evidence that despite the stress of caring for a person with dementia damage, family members have the capacity to cope, adapt, and grow through their experiences. Nurses can assist families to identify their unique strengths and enhance family resiliency so they can navigate the "lonely road" of younger onset dementia.

Item Details

Item Type:Refereed Article
Keywords:younger onset dementia, systematic review, family carers
Research Division:Health Sciences
Research Group:Nursing
Research Field:Acute care
Objective Division:Health
Objective Group:Provision of health and support services
Objective Field:Nursing
UTAS Author:Cabote, CJ (Ms Christy Cabote)
UTAS Author:Bramble, M (Dr Marguerite Bramble)
UTAS Author:McCann, D (Ms Damhnat McCann)
ID Code:102483
Year Published:2015
Web of Science® Times Cited:25
Deposited By:Health Sciences
Deposited On:2015-08-25
Last Modified:2017-11-02

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