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Patient Centred Systems: Techno-Anthropological reflections on the challenges of ‘meaningfully engaging’ patients within health informatics research

Citation

Wong, M-C and Almond, H and Cummings, E and Roehrer, E and Showell, C and Turner, P, Patient Centred Systems: Techno-Anthropological reflections on the challenges of meaningfully engaging' patients within health informatics research, Studies in Health Technology and Informatics, 215 pp. 52-66. ISSN 0926-9630 (2015) [Refereed Article]

Copyright Statement

Copyright 2015 The Authors and IOS Press

DOI: doi:10.3233/978-1-61499-560-9-52

Abstract

This chapter explores how Techno-Anthropology can contribute to more explicitly professional and ethically responsible reflections on the socio-technical practices involved in meaningfully engaging patients in health informatics research. The chapter draws on insights from health informatics research projects focused on chronic disease and self-management conducted in Tasmania during the last 10 years. Through these projects the paper explores three topics of relevance to ‘meaningful engagement’ with patients: (i) Patient Self-Management and Chronic Disease (ii) Patients as Users in Health Informatics research, and, (iii) Evaluations of outcomes in Health and Health Informatics Interventions. Techno-Anthropological reflections are then discussed through the concepts of liminality, polyphony and power. This chapter argues that beyond its contribution to methodology, an important role for Techno-Anthropology in patient centred health informatics research may be its capacity to support new ways of conceptualising and critically reflecting on the construction and mediation of patients' needs, values and perspectives.

Item Details

Item Type:Refereed Article
Keywords:patient-centred, health informatics, chronic disease
Research Division:Information and Computing Sciences
Research Group:Library and Information Studies
Research Field:Health Informatics
Objective Division:Health
Objective Group:Health and Support Services
Objective Field:Health and Support Services not elsewhere classified
Author:Wong, M-C (Dr Ming Wong)
Author:Almond, H (Mrs Helen Almond)
Author:Cummings, E (Associate Professor Liz Cummings)
Author:Roehrer, E (Dr Erin Roehrer)
Author:Showell, C (Dr Chris Showell)
Author:Turner, P (Associate Professor Paul Turner)
ID Code:102199
Year Published:2015
Deposited By:Health Sciences
Deposited On:2015-08-04
Last Modified:2016-06-01
Downloads:0

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